Autism will always be hidden

Boy runs through woods with huge tree in front of him

Autism is hidden. It does not matter if awareness grows. It does not matter how much support or how many services are available to autistic people. It does not matter, even, if an autistic person has behaviours that set them apart, if those who are dealing with them know that they have autism, if it is obvious that they are different.

Even then, it is hidden.

I scroll through my newsfeed and I see the face of a boy, no more than thirteen or fourteen. He is battered and bruised. A long, angry graze covers half of his face. When the police officer asked him to look, asked for his name, for the reason he was there, the boy had stayed silent, unable to answer, unable to look him in the eye.

And so, he was wrestled to the ground, cuffed and controlled. When he struggled (the thought of what that must have felt like to him makes my stomach turn) the police officer struggled back, used force to restrain him. The boy was locked in a cell until his mother could come. Still he could not speak, did not explain.

Autism is hidden.

A supply teacher asks an autistic student to sit in another chair, and that student cannot help but flap, make angry noises, refuse to obey the instruction. The teacher sees a reasonable command being disobeyed and judges the child as a trouble-maker. The child cannot conceive of moving to another chair and so is sent out of the room, misses out on the lesson, feels even more uncomfortable and alone.

Autism is hidden.

An employer fails to understand how they have judged an autistic employee unfairly. “I told him he could come to us any time. I said if he had ever misunderstood something or needed extra support, he just needed to ask.” But the autistic adult did not know when they had misunderstood, found it unbearably hard to recognise when they needed support and to know how to ask for help. And so, they were sacked – for not “meeting people half-way.” For not “trying” to overcome their disability.

Even when it is known, autism is hidden.

When friends and relatives say that there is so much more knowledge these days, there is so much more to support my son – they are partially right. Awareness grows. Understanding grows. They help. But however much society strives to support autistic individuals, autism will always be hidden. It will always take effort, to even out the world, to make it fairer.

My little boy has come swimming for the first time in many months. The pool is busy and unfamiliar. He is anxious at first. We play silly word games and stay close to him. His father lets him splash, pulling exaggerated faces as the water hits his face. My boy is thrilled and splashes his father over and over again.

Little boy smiling

“Let’s play splash the daddy!” The game delights him and he relaxes, grows in confidence. He ventures a little further from us, bouncing along, enjoying the sensory experience of floating. But every few minutes he comes closer and splashes his father, shouting “Splash the daddy!” and watching the exaggerated gurns and shocked faces with glee.

A group of mothers and babies enter the pool. My son is fascinated by babies. He will always approach strangers, eager to learn if their baby is a boy or a girl. I see him bounce close to one of the mothers and babies and so I quickly move towards him. Usually he asks, “Why do you have a baby?”

The strangeness of the question often knocks people a little off balance. Usually, they do not give the right answer. My son needs them to say that the baby is their son or daughter. I linger behind, ready to give the right answer for him, so that he does not become distressed by the wrong one.

But today, he does not ask that question. Today he says, “Let’s play splash the baby!” with a delighted grin on his face.

The mother is mortified. Her face transforms into a scowl. She places her hands protectively over her baby’s head, angles herself away from my son, as if he is something dangerous, something awful.

“Er, we will not play splash the baby, thank you very much!” She looks over at me, disgust and scorn clear on her face. What kind of a child must I have raised, to think it is okay to splash babies?

My son has not raised his hands to splash. He was just asking if they wanted to play the game. For him, when you come into the pool, you might feel a little scared. But playing Splash the Daddy is fun and makes you feel better. But daddy was on the other side of the pool.

My son has no concept that splashing may seem cruel to others, or that it may not be deemed ‘good’ behaviour to splash a tiny child. There is no malice in him, not an ounce of aggression or bad feeling. He simply sought to make a connection, because he likes babies, likes to watch them and talk about them. He wanted to enjoy the new game with the baby girl.

It is a small thing, a tiny part of our day, soon forgotten by my son. But my heart broke a little, to see that scowl, to witness that unfair judgement. Because I know that these misunderstandings will only grow, as he does.

People will always judge what they see by their own experiences. Their view of the world, of the actions of others, is always coloured by what they think is happening, by what they think they would do. That will never change.

Autism is, will always be, hidden.

It takes effort to step outside yourself and truly understand that others are different.




For more about autism awareness, you may like:

A Moment in a Life with Autism

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2 thoughts on “Autism will always be hidden

  1. Yes. Yes. Yes. We had scowls of displeasure in a child friendly cafe because my son had to shout, “Don’t sit down,” repeatedly for about 20 minutes while he adjusted to the space and the sounds. I sat there witnessing something beautiful but the scowling people expected me to intervene; of course, if I had… 😉

  2. I hope that it will become less hidden and that people will become more tolerant of difference. I know that I used to find swimming pools one of the most stressful places in the world – I always had to be alert to the fact that my son might start policing everyone else – telling them off if they broke any rules. He used love creating waves in pools and he was always totally oblivious to the stares and alarm of parents with younger children who were in danger of getting splashed. I was constantly telling him to stop or go to a quieter area of the pool. I remember always being on edge in case things escalated. #spectrumsunday

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