How can I balance my children’s needs?

How can I balance my children’s needs?

My children are not quite six and not quite four – and they are respectively autistic and neurotypical.

Littlest knows that her brother is different – she has said as much to me. She knows he plays differently, reacts differently, that he is not like “the other boys and girls.” She sees that he is treated differently.

So much insight, for so small a girl. But knowledge is power, and she also knows she has power over him. She has nous in abundance and Biggest does not.

And so often, in fact more and more frequently, she likes to light his fuse just to watch the world burn.

When Biggest gets in from school, he is always allowed one hour of YouTube. This happens every day, without fail. He looks forward to it. He repeats the knowledge, over and over, as he walks home from school.

“I will have my YouTube soon. I have been a good boy at school. Now I can have my hour of YouTube.”

Littlest knows this. She also knows that her brother will ignore her, that he will watch his videos to the exclusion of all else. She knows that she cannot choose the nursery rhymes or videos that are put on – the choice must be his. She knows that if she contradicts this absolute, he will rant and wail…

“You can’t have your YouTube. Mummy said.”

“H! Please do not say that to your brother. Do not lie. Mummy did not say that. E can have his YouTube!”

But it is too late. Her brother is already screaming. She looks at him, smiles and says –

“No YouTube for E. You can’t have it!”

I have to grab her brother now, before he hurts himself, or her. He is flailing around, screaming that she is wrong that he is allowed his YouTube. Littlest has moved to one side, out of his reach, but she is still smiling slightly. It takes a long time for me to talk Biggest into being calm, for him to realise that he can have his YouTube. It does not matter how many times we tell him not to listen, how many times we say that he must try to ignore her when she says things that are wrong, he cannot.

He cannot.

And so I am left to try to explain to her, to try to make her understand that her actions are cruel. She is so, so small – so small to understand the millions of ways we negotiate our way around her brother, so small to be the mature one, to show restraint and compassion.

Now she cries. She has been told off for lying and her brother is the one who ends up with the attention and comfort that she craves. I am left, sitting cross-legged on the floor, trying to give solace while both my children sob. I do not know what I could have done to keep them both happy.

This happens hundreds of times a day. She makes noise when he needs quiet. She says she is too cold when he wants the back door open. She begs him to play when he does not want to and refuses to play when he comes to her with an idea for a game. She is not cruel. She loves him. She wants him to play with her. She wants them to choose videos together.

I know she just needs love and attention. I know that so often, things must seem very unfair to her – when her brother gets help with his clothes and she does not, when he has a meltdown and we spend all our energy making sure he is ok, when we have to leave places that she loves because Biggest cannot cope. But I also know that he is not capable of managing his reactions when she goads him, though we try so hard to help him learn.

The responsibility of keeping Biggest safe and happy. It will be, it is hers too.

I just hope that, as she grows, she does not come to resent him, and us. And I wish there was a way I could make things fairer, for both of them.

 


 

2 Comments

  1. Sally Loomis
    5th Oct 2018 / 5:18 am

    Mama, you are doing amazing. This post just pulls on my heart strings because you are right, there is nothing you can do to make them both happy- all the time. While that makes sense when you say it out loud, it still tears your heart apart, because you are human. But you are doing your best, and THAT is enough. I think you may like this book I just finished, Space for Love by Gayle Nobel. She has been there and and her words are a tear jerking and smile inducing account of the many challenges and joys autism brings to our lives. It was amazing, I’m going to red it again. Please check it out, you will not regret it– I assure you. Thank you again, Mama and hang in there.

    • Someone's Mum
      Author
      5th Oct 2018 / 9:10 am

      Thank you ever so much. I will check it out.

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